Friday, September 12, 2008

Funny Man Kai

He is turning into a little man! He loves to make us laugh, and he loves to see what he can get away with. He thinks the funniest thing ever is when you are watching TV (I am trying to watch my exercise videos to learn the new routine by tomorrow!) and he changes the channel. He runs away and squeals with delight, and goes right back to do it again once you change it back.



Here is my proud moment of the day. Naturally I did not feel he was ready for potty training or that he would be any time soon consider his developmental delays. But I went in the bathroom today to find him standing in front of the toilet with his pants down! He is actually a very smart kid - not cognitively delayed. I have to remind everyone that since he is behind in all the other areas.







Another activity he entertains us all with is mimicking us. He repeats many one syllable words now, to the best of his ability, and repeats sounds and simple actions we make. We sigh, he sighs. We blow on our food to cool it down, he blows on his food. He likes to say "weeeee!" on swings and knows 5 baby signs now. It's fun to finally be able to communicate with him and show him we understand what he wants.



Here is the medical update: The doctors at the children's hospital got a hold of the MRI scans and agreed they are concerned with the small size of the pituitary. Because this increases the likelyhood of low thyroid levels, they want to start him on synthroid anyway, even though his numbers are currently good, because they were low previously. I do believe that God has healed him in many ways and it's possible for God to use even a small pituitary to produce enough thyroid hormone as he has recently - however the doctors are only requesting he take it until he's three, and then we can reevaluate and check his levels again. Since it's a relatively harmless drug and I don't want to fight the system we're going to go for it. There is a natural version of thyroid but it comes from pigs and I have a problem with that. I'm thankful we'll have an opportunity to get him off medicine in just over a year. The endocrinologist said the growth hormone stimulation test is optional at this point, (at his age it is not detrimental if it's a little low) but we probably will go ahead with it. Problem is no one can tell me how much it will cost - not the clinic, not the insurance company, and not the provider network. They are sending me in circles. So this test will likely be in October. This is the excruciating 4 hours in a hospital room with him wide awake hooked up to an IV and he can't eat or drink, after fasting overnight.

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